Member for Western Victoria
Derryn Hinch’s Justice Party

Cystic Fibrosis Dinner Members Statement

GRIMLEY (Western Victoria) (13:22:25): Last Saturday night I attended Cystic Fibrosis Geelong’s annual gala dinner, held at The Pier, with my wife and staff. Cystic fibrosis is the most common life-limiting genetic disease. A baby is born every four days with CF, and 50 per cent of these will die before their 35th birthday. They can expect to take 40 tablets a day to digest food and fight infections and have up two hours of physiotherapy every single day to clear the mucus from their lungs. They will have a high risk of developing early onset osteoporosis, CF-related diabetes, liver problems and infertility, amongst other issues. Congratulations to Leann and the committee for your endless persistence in creating a wonderful event.

I would like to also thank the broader Geelong Community, who over the years have donated over $200 000 towards research for a cure for CF, $100 000 of which was donated last Saturday night. In 2016, its inaugural year, the gala had an unexpected attendance of over 500 people, and is growing each year. This is a testament to the committee’s enduring hard work and great entertainment. Yesterday I was also pleased to receive, along with others here, a lapel pin and umbrella from Cystic Fibrosis Community Care. I wear this lapel pin to raise awareness of CF and to show Victorians who are living with CF that they are being supported. I hope to support their initiative in the future and do my bit to ensure that one day CF stands not for ‘cystic fibrosis’ but for ‘cure found’.


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